The Making the Most of Now podcast brings together the Multifocal Motor Neuropathy community to discuss this rare neurological condition and related ones. We talk to medical experts, patients and their supporters in the hope of informing and inspiring.
The Road to LA28 – Paralympics Series with Ben Watson – #2 – Gearing up for the Worlds – Making the Most of Now
As he prepares for the World Championships in Huntsville, Alabama, Ben and I sit down to catch up. We discuss how his riding is going, how he has prepared for the Worlds, his hopes for the races and a how he and his team mates relax as they gear up for an event of this kind. To follow Ben and the rest of the Para-cycling Worlds the event schedule and details of how to watch the races are at https://usacycling.org/article/how-to-watch-the-2026-uci-paracycling-road-world-championships. We wish Ben and we everyone involved the best and hope he manages to find a decent coffee when he needs it!!
- The Road to LA28 – Paralympics Series with Ben Watson – #2 – Gearing up for the Worlds
- The role of patient voice in informing government treatment funding decisions – The live case of funding a new CIDP treatment in Australia
- Pushing the Boundaries of MMN Research – Dr Nicolas Dubuisson
- Miles Washburn – Gearing up for Miles for GBS
- Nicole Tait – The Nuts and Bolts of Rare Disease – IVIG and SCIG
Rare Disease Patient Advocacy 