The Making the Most of Now podcast brings together the Multifocal Motor Neuropathy community to discuss this rare neurological condition and related ones. We talk to medical experts, patients and their supporters in the hope of informing and inspiring.
Nicole Tait – The Nuts and Bolts of Rare Disease – IVIG and SCIG – Making the Most of Now
Special episode exploring our experiences with the two different ways that immunoglobulin treatment is delivered. As patients with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) and Multifocal Motor Neuropathy, Nicole and I both rely on regular infusions of Immunoglobulin to treat our conditions. We both started receiving the treatment intravenously but have subsequently switched to subcutaneous infusion. What have we found? What prompted the switch? How do we feel about the treatment now?We delve into these questions and many more…Nicole is part of the incredible team at GBS/CIDP Support Australia who support patients with GBS, CIDP, MMN and related conditions across Australia. To learn more about their work go to https://gbscidpsupport.org.au/
- Nicole Tait – The Nuts and Bolts of Rare Disease – IVIG and SCIG
- The Road to LA28 – Paralympics Series with Ben Watson – #1 – Introduction & the year so far
- Rob Long – Uplifting Athletes and the Rare Disease Community
- Miles Washburn – Miles for GBS – "It's all about the patient"
- Dr Ludo van der Pol – MMN Innovation and Trials
Making the Most of Now 