The Making the Most of Now podcast brings together the Multifocal Motor Neuropathy community to discuss this rare neurological condition and related ones. We talk to medical experts, patients and their supporters in the hope of informing and inspiring.
Steps Of Strength – Trekking the Kokoda Trail with GBS – Global GBS awareness campaign – Making the Most of Now
In this episode, I chat to Sienna James about her GBS journey and her remarkable Steps Of Strength project that aims to raise awareness of GBS around the globe. In December 2026 only two years after Guillain-Barré Syndrome (GBS) left her unable to walk, Sienna James will attempt to walk the Kokoda Trail a mountainous, 96km jungle path in northern Papua New Guinea. Accompanied by one of her oldest friends and a guide, Sienna is aiming to complete this arduous route made famous by the exploits of the Australians and Papua New Guineans who fought the Japanese there during World War Two.Sienna is aiming to complete the journey not just as part of her ongoing rehabilitation, but in order to raise awareness of GBS around the globe. To help achieve this she is planning to be joined by Silvereye Films Matt Jenke who will capture the trek and Sienna's GBS journey on film.US$50,000 is required to make this project and the film a reality. Sienna is raising money now. To learn more go to https://makingthemostofnow.co.nz/stepsofstrength/.To donate direct to the project go to https://www.gofundme.com/f/conquering-guillain-barre-syndrome-kokodaInterested in sponsoring the project contact us at clive@makingthemostofnow.co.nz
- Steps Of Strength – Trekking the Kokoda Trail with GBS – Global GBS awareness campaign
- The Road to LA28 – Paralympics Series with Ben Watson – #2 – Gearing up for the Worlds
- The role of patient voice in informing government treatment funding decisions – The live case of funding a new CIDP treatment in Australia
- Pushing the Boundaries of MMN Research – Dr Nicolas Dubuisson
- Miles Washburn – Gearing up for Miles for GBS
