Making the Most of Now

About Us

We are a social enterprise helping people and organisation’s across the rare disease ecosystem to realise their full potential and maximise their impact.

Harnessing the spirit of those living boldly with rare disease, we provide our clients with the inspiration, insights and support needed to release untapped potential, spark innovation and enable goals once thought impossible to be achieved.

Combining lived rare disease experience with over 25 years experience leading and supporting high performing teams in dynamic environments globally, we help our clients and the rare disease community to truly Make the Most of Now.

Founded in 2021, we invest our profit in projects that improve awareness and understanding of Multifocal Motor Neuropathy and support those affected by it.

Our Services

Keynote Speeches | Executive Coaching and Leadership Development Programmes | Transformational Change Advice I Strategic Planning and Problem Solving Workshops

Patient Advocacy Support | Research Project Management

Film Production and Distribution | Podcast Production

Outdoor Adventure and Community Event Management | Fund and Awareness Raising Campaign Management

Our Clients

We work with a range of partners including healthcare leaders, Paralympic athletes and leading creatives to support clients that include pharmaceutical companies, government agencies, healthcare service providers and patient support organisations.

Recent work includes:

Organising fundraising challenges that have raised over US$200,000 for Multifocal Motor Neuropathy research

Production of No One Rides Alone – Feature Length Film about the Tour de MMN 2025

Support to the Clinical Governance Board of a national healthcare service provider

Delivery of keynote addresses at medical conferences, patient support organisation meetings and a training course for staff of a national healthcare service provider.

Provision of strategic planning support to an international Not for Profit and a national patient advocacy organisation.

Our Story

Making the Most of Now was founded by Clive Phillips following his diagnosis with Multifocal Motor Neuropathy (MMN). initially planned as a one off project to raise funds for research into MMN, our scope was widened in order to deep en our impact after Clive saw the positive impact of his work and met many inspirational people affected by other rare diseases,

Our Founder

From the heat of the desert to the cold of the polar regions, British Army Veteran Clive Phillips has led teams that have achieved ambitious, challenging goals under the most demanding circumstances. After service that included deployments in Northern Ireland, Iraq and Afghanistan, Clive moved to New Zealand, from where he has led disaster response operations in New Zealand, Fiji, Vanuatu and Papua New Guinea and logistics projects in Antarctica.

Before founding Making the Most of Now, Clive worked as a Strategic Business Advisor, Transformational Change Specialist and Leadership Coach. working with a range of public and private sector clients. A lover of the outdoors Clive has led climbing, mountaineering, mountain biking and bike-packing expeditions in Europe and beyond. He is a former Board Director of the GBS|CIDP Foundation International.