Proven Patient Centred Approach
We combine lived experience of rare diseases with strategic and operational planning expertise and an innate ability to catalyse connections across the rare disease ecosystem.
- Deep Patient Understanding. We start by ensuring we truly understand the patient experience—not just the clinical symptoms, but the emotional, social, and practical impacts of living with a rare disease. This includes direct patient engagement and leveraging my own lived experience.
- Strategic Alignment. We work with your leadership team to align patient needs with business objectives, creating strategies that serve both patients and shareholders. This ensures sustainability and long-term commitment to patient-centred solutions.
- Ecosystem Mapping & Connection. We identify and connect you with key stakeholders across the rare disease ecosystem—patient groups, healthcare providers, researchers, and regulatory bodies—creating a network that supports your goals.
- Operational Implementation. We help you implement patient-centred approaches across your organisation, from research and development through to marketing and patient support programs, ensuring consistent patient focus
- Continuous Improvement. We establish feedback mechanisms and measurement systems that ensure your approach continues to evolve and improve based on real patient outcomes and experiences.
Why This Approach Works
Most companies struggle to maintain authentic patient focus because they lack direct connection to the patient experience. My approach ensures that patient voices aren’t just heard once—they’re embedded into your organisational DNA, creating sustainable patient-centricity that drives both better outcomes and business success.
For more information please contact us at clive@makingthemostofnow.co.nz or +64(0)21771624.
Amplifying Patient Voices to Transform Rare Disease Care 